- To characterize the clinically recommended prevention behaviors of limiting physical activity and rehydration (Meremikwu & Okomo, 2011) as well as families’ perception of their helpfulness and cultural acceptability.
- To identify temporal relationships between preventive behaviors and daily pain reports.
- To explore socio-demographic and psychosocial characteristics associated with children’s use of preventive behaviors and their perceived helpfulness and cultural acceptability.
Participants will include 45 children with SCD and their primary caregiver. Families are currently being recruited from the University of Mississippi Medical Center. Upon enrollment, children and caregivers complete questionnaires on usual pain, anxiety and depression, and quality of life.
There is currently limited research investigating home-based prevention behaviors for pediatric SCD pain. This research is important because it may identify modifiable target behaviors for future behavioral pain interventions that are acceptable to children with SCD and their families and that could prevent pain escalation and subsequent hospitalization.
Barakat, L. P., Simon, K., Schwartz, L. A., & Radcliffe, J. (2008). Correlates of pain-rating concordance for adolescents with sickle cell disease and their caregivers. Clinical Journal of Pain, 24(5) , 438-446.